It started with back pain.
This was near the end of September, maybe a week or two before I was set to spend a week in London. It was my thoracic vertebrae and this intense feeling that I needed to crack my back. The pain then spread to my entire upper back, so I went to urgent care, got muscle relaxers, and hoped that would be the end of it.
When my back pain still wasn’t better after coming home from London, I saw an orthopedist. X-rays were taken, spine looked fine. He ordered a prescription anti-inflammatory (celebrex), more muscle relaxers, and physical therapy.
Then, my hips started hurting. It was little things: standing up took longer, walking up and down stairs was difficult, and getting down on the floor to clean the litter boxes every night was painful. My IT band had been tight for a while now, and I was finding no relief from PT, heat therapy, and stretching.
I went to a different orthopedist (same practice, different specialty). More X-rays, no hip issues. He gave me a steroid shot in both hips because perhaps this was a simple case of hip bursitis. The steroid shot helped for a day or two, and then I was back to being in pain. He also prescribed a high dose of meloxicam as well as more physical therapy.
Still, there was no relief. My hips still hurt. My IT band was still incredibly tight. And I started noticing that I was having a lot of shoulder pain and achiness. I chalked it up to the hip pain. Maybe it was the way I was bracing myself when I sat down or stood up, and that was causing stress to my shoulders.
And then I saw the commercial.
This was mid-December. I was watching the Survivor finale with my mom, and we watched a commercial that said something to the effect of, “Do you have psoriasis? Are you experiencing joint pain? You could have psoriatic arthritis!”
I do have psoriasis (scalp psoriasis), and yes, I’ve been having joint pain for months.
Immediately, I started googling. What is psoriatic arthritis? What are the symptoms? Is this why all of these typical treatment methods that should help something like hip bursitis or tendinopathy aren’t working?
The problem was that my company had just been bought. We were in the beginning stages of this transition, and I was still waiting to find out the details of our health insurance plan. I didn’t want to schedule a rheumatology appointment using one health insurance plan, only to find out that the new health insurance wasn’t accepted at this office. And then, for some dumb reason, I thought I had to wait until I had my insurance card (or at least a digital copy) to set up the appointment, so I waited until January 2nd.
The earliest appointment was the end of January, which was a huge disappointment. I know specialists are harder to get quick appointments with, so I should be grateful it was only a few weeks of waiting. But I was just in so much pain, and I couldn’t fathom living like this for another few weeks.
Alas, I did. It was a rough start to the year. Let’s take a break from storytime to discuss all of the aches and pains I’ve been dealing with over the past few months:
- Shoulder pain – Using my arms to brace myself when getting out of bed or from a seated position on the floor was excruciating. I also haven’t been able to lift my arms higher than parallel to the floor.
- AC/SC joint pain – I am an expert on this joint now! The AC joint connects your collarbone to your shoulder joint, while the SC joint connects the other side of your collarbone to your sternum. This is a very common area for psoriasis arthritis pain. And surprise! These joints are crucial to almost everything we do. Sitting, standing, moving our arms, typing, turning over in bed… this pain sucks.
- Sausage finger – My left ring finger started hurting a few weeks ago. It became swollen and difficult to bend. Even touching the finger hurt, so I started keeping a brace on that finger to protect it. Thanks to this sausage finger, I couldn’t even brush my hair with my left hand because I couldn’t grip the hairbrush! That’s lovely.
- Elbow pain – For people without psoriatic arthritis, this is typically called golfer’s elbow or tennis elbow (because I had both!). Gripping anything with this arm caused shooting pain, and sometimes it would just ache and ache for no reason at all.
- Hip pain – We’ve been over this. My hips have been on the struggle bus since October. I can’t sleep on my side because it puts too much pressure on my hip. I have to oh-so-slowly straighten to a standing position when I’ve been sitting because my hips get so stiff.
- Tight IT bands – I love sitting criss-cross applesauce. I love tucking one foot under my other leg when I’m sitting. I love being able to put on socks and shoes without excruciating pain. This tight IT band has been awful.
- Knee pain – A few weeks ago, my left knee decided to join in the fun! The interior side of my knee is tender and aching, making it hard to walk and even straighten that leg. WHY.
- Achilles’ tenderness – This one has been going on for a while, and it’s another classic sign of PA. It’s only on my right side, but it makes walking hard and for a while, I had to go up and down stairs one at a time because putting too much pressure on that heel was no bueno.
Needless to say, it’s been a very painful and difficult few months.
Yesterday, the day I had been waiting for and counting down to arrived. It was rheumatology appointment day! Cue all the celebration emojis!
The rheumatologist spent a lot of time with me during this appointment, listening to me discuss my symptoms, doing a full examination of all my joints, and taking me through some mobility exercises to determine my range of motion. At the end of the appointment, she confirmed that I likely had psoriatic arthritis. She ordered blood tests to check for inflammatory markers, rule out rheumatoid arthritis, and establish baseline lab numbers (for things like kidney function, white/red blood cell counts, etc). She also wants me to get X-rays to determine if there are any bone or joint changes—she doesn’t think there will be, but wants to have updated X-rays to compare once I begin treatment.
And, the best news of all, she started me on prednisone! Maybe some people wouldn’t consider this happy news, but as someone who has been in chronic pain for five months and hasn’t had a good night of sleep since then… I am over the moon. The doctor wanted me to wait to start prednisone until I got my blood tests done, so what did I do? I hopped over to the Quest Diagnostics app immediately after the appointment and scheduled a blood test! I got it done within 15 minutes of finishing my rheumatology appointment because I was not going to wait to start prednisone.
I took my first dose yesterday (starting at 24mg, although my baseline will be 10mg until I’m in a treatment protocol), and as I’m typing up this post eight hours later, I’ve noticed such a difference in my body. I can stand up without pain. I reached for a plate in a cabinet with my right hand (the one with the elbow flare), and I didn’t feel shooting pain up my arm. My sausage finger is not as swollen. I was able to get down on the floor to clean out a litter box, and while it was still a little difficult (especially standing up since my AC/SC joint is still achy), it was easier than it has been in many, many months.
There’s a lot to be determined, of course. I have a follow-up with my rheumatologist in two weeks to discuss my bloodwork and X-rays, and then determine the right course of treatment. It may take some time to find the right medication/dosage, and I may have flares during that period. But right now, I feel like I have a new lease on life. I did not want to get diagnosed with a chronic autoimmune condition, but if I have to have one, then so be it. I’m glad I finally have a reason behind all of my pain and a caring doctor who is ready to help me get on the right track to feeling better.
(I’d like to give a special hat tip to Lisa, who has always been like a big sister to me and even more so now, as someone who is further along in this autoimmune arthritis journey and has been such a helpful resource. Knowing I’m not in this alone has helped more than she’ll ever know!)












