This weekend, I finally had my CPAP Titration Sleep Study! I was diagnosed with severe obstructive sleep apnea (which means I stop breathing at least 30 times an hour while I’m sleeping) way back in May and had to wait over two months to finally get this sleep study done, which will help my doctor figure out the type of CPAP mask I need and the correct oxygen levels for the machine. I went into this sleep study completely blind, as I didn’t really know what to expect or how the night would play out. So I figured I would write it all down here, both for other people’s benefits as well as my own.
I arrived at the sleep clinic a few minutes before my appointment time of 8 p.m. I had to get buzzed in by the sleep technologist who would be monitoring me throughout the night. She was warm and kind, and she immediately put me at ease! I was really worried about the logistics of sleeping with someone watching my every movement (would it be weird or creepy?), but she made me feel a lot better about the situation. Plus, she told me that she would spend most of the night monitoring the data coming from the sensors and such, not so much watching me sleep.
I was taken to the room where I would be staying, which was very bare bones. For some reason, I was expecting something a little nicer? I don’t know why! I even had to use a communal bathroom. The bedroom consisted of a chair, a bed, a bedside table that had all of the CPAP equipment, and a little armoire in the corner. When I arrived, I filled out some paperwork and changed into my pajamas, and then the technologist came in to test one of the CPAP masks on me. It was a nasal mask that was pretty small—it fit right under my nose with two little cushions that were jammed into each nostril to deliver air. Once we figured out the right size for the CPAP mask, the nurse turned on the machine so I could get used to it and she could make sure it was delivering the right amount of oxygen. It was really weird at first! I’m so used to breathing through my nose and exhaling through my mouth, but with a CPAP, you have to keep your mouth closed since it’s delivering continuous oxygen. You have to breathe in and out through your nose. It took some getting used to!
After getting the CPAP adjusted, the technologist removed it so that she could start placing all of the sensors around my body. She had me sit in a chair at the front of the room for this task. And there were a lot of sensors:
- A belt that went over my chest and over my belly
- Two sensors on my legs to monitor leg movement during sleep
- Two sensors placed on my back and two sensors placed on my chest to monitor my heart rate
- One sensor placed on my neck to monitor snoring
- A bajillion sensors placed all around my head—some on my face and some on my scalp to monitor brain and muscle activity
Once all the sensors were placed, the nurse clipped them together behind me and then hooked all of the wires into some sort of contraption. Then, we walked together over to the bed where I laid down as if I was going to sleep so she could hook the contraption onto the bedside table next to me. She wanted to make sure I felt comfortable and that all of the sensors were accurately calibrated. She left the room to check on the sensors at her station and then came back to help me put on the CPAP mask. She also put a pulse oximeter on my middle finger. Once she confirmed that everything was working well with the mask, she told me “good night” and turned off my light!
It was probably right around 9 p.m. at this point and I wasn’t expecting to go to bed so early! I had brought a few books to read and my laptop to keep me busy until I was sleepy. But apparently, that was not the mission here.
I found it really hard to get to sleep. For one, I wasn’t a fan of the pillow situation. I love big fluffy pillows and I want a lot of them. I meant to bring a pillow from home (since that was allowed) but completely forgot. Big mistake! The pillows were super flat and I am not used to sleeping with such little pillow support. And, of course, it was hard to sleep with the CPAP machine and all the wires. The ones on my leg were the most annoying because they got tangled at some point and made it hard to move my legs. (I should have called the sleep technologist to untangle the wires, but I didn’t want to be a bother. HI, I’M AN ENNEAGRAM 9.)
I think I fell asleep for maybe 30-45 minutes at some point and then I woke up because the mask was bothering me a lot. Since the cushions were jammed into my nose and I have a hoop in one of my nostrils, that side of my nose started aching. But the bigger issue was the way the mask was pressing into the area of skin between my nose and upper lip (which Google tells me is called the philtrum, TMYK). It was hurting a lot and I kept trying to draw the skin away from the mask by drawing my upper lip inside my mouth, but that only worked for a little bit. I told myself if I was still awake and dealing with this issue around 11:15, I’d call the technologist. But because she was so wonderful, she came in a little after 11 to ask me if anything was wrong because I’d been awake for quite a while. So I told her about the mask issue.
She removed that mask and gave me a different one to try and I could immediately notice a difference. This one was also a nasal mask but it had a sort of suction-like cup that went over my whole nose, rather than jamming cushions inside my nose. It felt so smooth and nice on my face, and since the hose was connected at the top of the headgear (rather than at the bottom of the mask like the previous one), it also was easier to sleep with. I like this new mask a lot more!
I didn’t get a picture of myself with this CPAP mask, but this is what it looked like.
Eventually, I fell asleep and slept off and on throughout the night. The technologist came in a few times during the night because she was having trouble getting a good blood oxygen level for me. She tried clipping an oximeter to my ear but that didn’t work, so then she gave me a smaller oximeter for my index finger.
At one point, I had to sneeze so I pulled the mask away from my face to sneeze and that caused one part of the headgear to unclip. I was trying to clip it back in myself but was having a hard time and was scared I was going to accidentally mess with the sensors around my head so I called in the technologist.
Around 5:15am, the nurse came into the room to wake me up. My sleep study was done! And then I got the news that she couldn’t ever get a good blood oxygen reading during the night and I may have to do another sleep study. It was really disheartening to hear that because I thought that was the whole point of a CPAP, but apparently, my blood oxygen levels are still low even while on the machine. (My sleep app told me my blood oxygen was at 90% on the night of my sleep study, which is the percentage it’s usually at when I’m not on a CPAP.) So I don’t know what happens next. My doctor will get the results soon and call me about the next steps. I’ve tried googling to figure out why I would still have low blood oxygen while on a CPAP but couldn’t find a conclusive answer.
Anyway, once the nurse woke me up, she removed the mask and then went through the process of removing all of the different sensors. She gave me a washcloth so I could remove any sensor goop from my face. Then, I filled out paperwork to notate how I slept, changed into street clothes, and was out the door by 5:30! The nurse sent me home with the two masks I used at the sleep clinic, but I can’t use them without the machine (well, I mean, I could wear them for shits and giggles but that would be weird), so now I wait to find out what my doctor wants to do next: another sleep study or a specific CPAP therapy that will help my blood oxygen levels? IDK!
This has been a very long post, but I want to end it with some of the things I learned doing an in-clinic sleep study and some of my tips:
- Bring what you need to sleep comfortably. Whether that’s extra pillows, a specific blanket, a noise machine, or cozy socks… you want to be as comfortable as possible so you get a good night’s rest and the sleep technologist can gather as much data as possible.
- You are not going to have lots of downtime, so maybe just bring your Kindle. My sample size is 1 so maybe this is different depending on the sleep clinic or the technologist, but I brought a bunch of things to keep me busy when it was honestly get in, get sensored up, go to sleep, go home. I didn’t even get to read before she turned out the lights, wah!
- The sleep technologist wants you to have a good night’s rest, so if you need a specific temperature to sleep, want a fan on, or extra blankets/pillows, tell them! (In hindsight, I should have asked if I could have had an extra pillow or two, but #enneagram9.)
- This may feel weird to you but it’s a normal workday for the sleep technologist. They aren’t there to watch your every move while you’re sleeping, but rather to keep track of the data coming from your sensors and make any adjustments necessary from there. I thought I would feel weird sleeping while someone monitored me, but it wasn’t at all!
- The day before the sleep study, wake up early, steer clear of caffeine, and do not take a nap. You want to be extra sleepy for this study! It’ll be hard but worth it.
That’s how my CPAP Titration Sleep Study went! Have any further questions for me? I’m happy to answer any and all of them!
Kim
UGH! I am so frustrated to read they didn’t get your blood ox! GAH!!!!! That’s the whole point!!! Grr. I hope you hear from your doctor soon with a plan.
Thanks for sharing all this. I was really curious! I can’t imagine getting any sleep at a place like this, especially with crappy pillows. LOL!
Stephany
It was SO hard to sleep deeply because I was so uncomfortable all night. I’m not looking forward to repeating the sleep study but at least now I’ll know to bring my own pillows!
Sarah
I cannot imagine being able to sleep in this situation!!
Stephany
It was nearly impossible! Next time, I’m going to ask if I can take a dose of melatonin beforehand.
Elisabeth
I struggle to sleep in ANY new setting and I cannot imagine managing to sleep with all these unusual things going on. What a bummer about not getting the right readings. ARGH!!! Hopefully you don’t have to repeat the study, but if you do you will know a lot more about what to expect so it should be at least a little bit more comfortable??
It’s an important next step in getting to the bottom of apnea, so a huge gold star for doing this!!
Stephany
Thank you, friend! It was so hard to sleep and I hope bringing some pillows from home will help next time. I’m also going to take if I can dose myself on melatonin! I’m not looking forward to repeating the study, but maybe I won’t have to?! Fingers crossed!
Hks
It’s so useful to see these kinds of posts from people so thank you for being willing to share!
I also think it would be so hard to sleep like that. My mom is on a bipap machine and said it has made a huge difference in her sleep quality. She does get frustrated with the mask though, so I think that might be a universal problem.
Stephany
One of my friends is on a CPAP and she only needs to wear it for 4 hours a night, so I’m hoping I might be able to do the same. The mask definitely gets annoying after a while!
And thanks! I always wonder if these kinds of posts are supremely boring to other people, but I like the details!
NGS
This was so interesting. I can’t believe you might have to redo the whole thing! What was the technician monitoring, if not your pulse ox?
This also encouraged me to do a write-up of a common medical procedure that I recently had done that I was struggling to find firsthand accounts of! I’ll work on it for later this week.
Stephany
She was monitoring my blood oxygen, but it just stayed low all night and the only way to increase it would have been to give me oxygen, which she couldn’t do with the CPAP running. (At least that’s what I’m assuming!) She was also measuring muscle movement, heart rate, respiratory rate, and brain waves!
Lisa's Yarns
Gah what an ordeal and then to find out you might need to repeat the process? I hope they figure out why your blood oxygen level is so low, even when using the CPAP! But yes, gold star for you doing this in the first place!! If you get a CPAP, I think the change in your quality of life will be so significant that you’ll be glad that you went through this!
Stephany
My best guess is that I’m going to need to be on oxygen WHILE using a CPAP, so I’ll probably have to do another sleep study to measure how much oxygen I need to get a normal reading. How fun!
I can’t wait to have all of this testing and waiting over with!
Suzanne
This was so fascinating, Stephany! I have such a hard time staying asleep, I feel like sleeping with all the sensors and mask would be really difficult. How disheartening that they were unable to get a good oxygen reading, though. I hope you find out next steps soon!
Stephany
It was so difficult to sleep with so much going on around me! And the flat pillows did not help one bit, ugh.
San
Uff, that sounds so uncomfortable (although I am glad it wasn’t as bad as you initially thought… but it is kinds weird that they hooked you up and you had to go to sleep at 9. That’s probably hard to do when you usually read to wind down, or something.
The most frustrating part, you don’t know if you have to do it again because they couldn’t get a good oxygen level reading. I am sorry.
Anne
Oh, how frustrating! I would just go with giving you a CPAP option for now, figuring your O2 is low anyway, and then see if you can get readings at home, when you’re comfortable with the CPAP? The crappy sleep definitely did not help, and I hope if you have to do it again that you are able to make it much more ‘you’ centric. Did you ask if you could read? because it seems as though they’d want you to SLEEP, unless they have a set number of minimum hours they have to record? I dunno. That would be hard, my friend. Here’s hoping your doc comes up with a *reasonable* solution. <3
Tobia | craftaliciousme
Thank you so much for sharing your experience. I have mine end of January and I am already a bit anxious of someone watching me sleep. In my mind it’s a hospital room with a huge window and people pass by and stand and watch. I do think you room looks cozy. I don’t expect anything like that.
I need to be at my study at 4pm. And bring a dinner. I had hoped to get outside after arriving but apparently no. I will be so bored… I usually don’t go to bed before 10.30/11. And if they wake me up at 5 am than the whole thing is crap… I ám usually awake by 5 and will go back to sleep at around 7.. Sigh. well, I guess I will experience all this in my own time.
Hope your doctor find a good solution on how to continue treatment.
Stephany
My advice is to wake up very early on the day of your appointment and don’t take a nap! So hopefully you’ll be very sleepy, even with all of the equipment on you. Good luck!